Huntington Project Web Site Closing May 1, 2009
Dear Huntington Project Web Site Visitors,
The Huntington Project was created in 2003 with specific aims in mind:
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increase communication within the community
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facilitate opportunities for clinical research (COHORT)
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provide a forum to evaluate research initiatives (SET-HD)
Happily, the mechanisms for sustaining these processes are in place and are now operating independently. Therefore, we will close the Huntington Project web site in early May 2009.
Thank you for your support and interest.
Sincerely,
(on behalf of the Huntington Project Communications Group)
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Announcements
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HSG to Conduct Research Study in Adults with Mild to Moderate Huntington's Disease - Wednesday, June 15, 2005
The Huntington Study Group (HSG) will be conducting a clinical study (TREND-HD) of the research medication – Ethyl-EPA – in persons 35 years of age or older who have mild to moderate Huntington’s disease (HD).
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Nominations sought for compounds to test for Huntington's Disease - Tuesday, June 15, 2004
The Huntington Project has launched a broad-based effort to systematically evaluate compounds to test as potential treatments for Huntington’s disease (HD). As a first step in this effort, the Huntington Project is asking everyone in the HD community – clinicians, scientists, individuals affected by HD, and advocacy organizations -- to nominate experimental treatments that they believe should be considered for research evaluation. Nominations can be made via the Huntington Project website (huntingtonproject.org) by clicking on the SET-HD tab. SET-HD stands for Systematic Evaluation of Treatments for HD. read more...
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Now is the time to find treatments that make a difference in the lives of people with HD! - Tuesday, June 15, 2004
The Huntington Study Group (HSG), Huntington’s Disease Society of America (HDSA), Huntington Society of Canada (HSC), Hereditary Disease Foundation (HDF), International Huntington Association (IHA), World Federation of Neurology Research Group on HD (WFN), World Congress on HD 2005 (WCHD), and National Institute of Neurological Disorders and Stroke (NINDS) announce an ambitious new initiative called the Huntington Project. The Huntington Project brings together under one expansive umbrella the clinical research efforts for Huntington’s disease (HD) that are underway throughout the world. The entire HD community, regardless of geographical location, is able to take part in the Huntington Project. As first steps, the Huntington Project has launched three new programs aimed at speeding up the clinical research process and making it more efficient and productive: COHORT, SET-HD, and a worldwide HD database. These initiatives offer opportunities for everyone in the HD community to be a part of the search for treatments that make a difference. read more...
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